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Supportive Care Needs of Parents and Caregivers of Children who have Rare Diseases
April 13 @ 12:30 pm - 1:30 pm$25
Parents caring for a child affected by a rare disease have unmet needs, the origins of which are complex and varied. Parents are seeking information to better understand their child’s rare disease and treatment options. This program will address ways to feel more confident in decisions making related to caring for a child.
Meet the Presenter:
Sharon King is the parent of a child who had a rare disease, Taylor King. She is a state-appointed member of the N.C. Advisory Council on Rare Diseases and chair of the N.C. Rare Disease Coalition.